Soundings contributors Gill & Bob talk to Judy to find out about Refsum Disease. Refsum is a little-known problem that can cause blindness, but is often misdiagnosed. Hear about the problem, the UK’s Refsum Centre of Excellence, how diet can help manage the disease, and an initiative to create greater global awareness of the problem.
Audio
You may listen here to preview the content. To download click the “Download” button below the audio player.
Refsum Disease can cause blindness but hopes are high that earlier diagnosis will improve treatment
Bob is semi-retired and has his own business working in motor sport logistics. He also produces radio shows, podcasts and recordings for broadcast radio and various charities.
Gill is a retired primary school teacher who became involved in audio for the visually impaired through volunteering for a local sight loss charity; initially on their Talking Newspaper team.
They are both passionate about producing entertaining and informative audio for the visually impaired. Sound and Vision is the banner name which covers the magazine shows, podcasts and other audio recordings that they produce for a variety of organisations.
We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. By clicking “Accept”, you consent to the use of ALL the cookies.
This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.